Wondering What Dave Thinks About This Kind Of Pain

TUNDEM22TUNDEM22
edited June 2013 in General Discussion

'Burning' skin / nerve pain / allodynia


 


Hi everybody.


 


I'm curious what Dave (and others like him) think about tactile and thermal allodynia? Since Feb 2010 I've experienced a 'burning' sensation on various parts of my body -- mainly my inner legs, perineum, lower back, stomach, and inner arms -- when 1) I'm in hot environments and I start to sweat or 2) my body parts touch themselves (e.g. holding arms against each other) or 3) certain frabrics rest against my skin (a pillow between my legs is the worst: I use it when I sleep for comfort purposes but the parts of my legs touching the pillow burn every night within a few minutes as the pillow warms up; the pain goes away for 30sec or so if I turn the pillow around to the cooler side) or 4) get stressed out and my body heats up.


 


The pain first started when I was in my late teens: I'd get the burning sensation in between my thighs during workouts when I'd get really sweaty and walk back/forth between weight-lifting sets. It'd go away immediately after the workout and not return. But it really took hold of me, like I said, in 2010 after doing lots of walking at work. Since then the sensitivity in my legs has remained and, as mentioned, spread to other parts of my body.


 


I've had tons of medical tests done and they've all come back normal (MRIs of brain and pelvis, bloodwork (liver, thyroid, etc), ultrasounds of organs in the trunk of my body). I've tried many meds, from tricyclic anti-depressants and anti-convulsants to oxycodone to cannabis - no relief.


 


I ate whatever I wanted when I was younger. For the last year or so I've eaten mainly a vegetarian diet minus a constant supply of chicken or fish.


 


I ate TONS of canned tuna for like 5 years (1-2 tins per day every day). The nerve pain I have can be caused by mercury poisoning so I cut out all fish two months ago and I've been taking 900mg ALA daily as well as fish oil (recently switched to krill oil) and certain foods (e.g. cilantro).


 


Nowadays I mainly follow the FODMAP diet since if I eat certain foods I tend to get really gassy and/or have loose stool.


 


Here's what I eat daily:


-Sunwarrior protein


-hemp seeds


-carrots


-green beans


-blueberries


-raspberries


-pineapple


-almonds, walnuts, sunflower seeds


-raisins


-apple cider vinegar


-extra virgin olive oil (just recently switched to virgin coconut oil)


-cacao powder


-dark chocolate (70% or higher)


-almond milk


-chicken (rosemary, cilantro, pepper, paprika)


-tomatoes


-chickpeas


-whole grain brown rice


-bell peppers (usually green)


-natural peanut butter


-natural almond butter


-ketchup


-mustard


-bananas


-chia seeds (sometimes)


-gluten-free brown rice flour, baking soda, baking powder, real maple syrup (for baking gluten-free, vegan muffins)


-cucumbers


-oranges


-Frank's RedHot


 


I've basically cut out all dairy and wheat (except for the odd pizza or something).


 


I've tried many different vitamins for months at a time that are supposed to help with nerve pain but I've noticed no difference: vitamin B complex, vitamin B12, inositol, ALA, vitamin c, vitamin d, acetly-l-carnitine, magnesium, calcium, etc.


 


Currently I take the following daily:


-Caltrate + vit D (helps keep stools solid)


-Betain HCL pills (usually 3-4 per meal) for digestion


-apple cider vinegar at night (1 tsp w water)


-ALA 300mg per day (supposed to help remove mercury)


-krill oil (500mg twice per day - just started)


-himalayan salt water in the morning


 


Obviously the typical answer I get is that there's something wrong with my nervous system and how my nerves are sending pain signals to and from the brain. I was a very stressed out, controlling, highly anxious person for many years while in school so I've been working at this whole thing from a mind-body perspective. I still experience discomfort though.


 


I seem to have a really easy ability to heat up and get flushed as soon as I get stressed and/or think/write about my pain - I'm very warm right now typing this out.


 


Any suggestions re: what may be wrong with me and/or what steps I can take to feel better?


 


Cheers!


Comments

  • John BrissonJohn Brisson The Legend Formerly Known as Ron Swanson ✭✭✭

    All that tuna sounds like Ciguatera to me, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2579736/.


    My book Fix Your Gut, is offered on Amazon for $9.99.

     

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  • katolotuskatolotus ✭✭✭

    I'd be more interested in what my doctors says, than Dave. What did he say?


    Katolotus

    MMA Fighter

     

    SUCCESS: A lot of little things done well

  • I'd be more interested in what my doctors says, than Dave. What did he say?


     


    As I mentioned, I've had MANY medical tests done. And I've been seen by tons of doctors, including the most highly-regarded pain specialists here in my city. They cannot provide a physical explanation for my pain. The only relief I have been able to get is via the use of tramadol (Ultram). Last summer, for example, while working inside a warehouse that gets very hot and humid I was able to make it through work with very little to no pain by using 150-200mg of tramadol every 4 hrs or so. My pain specialist couldn't provide any specific details on why this drug provides relief and no others do. However, the drug makes me extremely tired and cognitively unfocused. I have the medication available if I need it but I cannot accomplish any tasks of significance (e.g. studying) while taking it. I'd still lke to know what is causing the pain rather than being satisfied with having (an expensive) drug that masks it!

  • All that tuna sounds like Ciguatera to me, http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2579736/.


     


    Reading this article over now, thanks very much.

  • John BrissonJohn Brisson The Legend Formerly Known as Ron Swanson ✭✭✭

    Reading this article over now, thanks very much.


     


    Let me know what you think.

    My book Fix Your Gut, is offered on Amazon for $9.99.

     

    I also offer coaching:  http://fixyourgut.com/health-coaching-information/

     

    Please join or like the Fix your Gut Facebook. Also please add me on twitter @FixYourGutJB.

     

    http://www.fixyourgut.com

     

  • still just treating the symptom, but you may want to try st. john's wort,both internally and externally (infused oil).  the homeopathic "hypericum", which is st. john's wort, has worked wonders for my tooth pain in the past.  ice? 


    also, your diet looks pretty inflammatory.  high in omega 6s.  and mycotoxin possibilities.  and check out this informative article, cause your protein powder, brown rice, chickpeas, peanut butter, etc. may not be the best sources of the nutrients you're wanting from them. 


     


    http://paleodietlifestyle.com/beans-and-legumes/


     


    good luck


  • TUNDEM22TUNDEM22
    edited June 2013

    still just treating the symptom, but you may want to try st. john's wort,both internally and externally (infused oil).  the homeopathic "hypericum", which is st. john's wort, has worked wonders for my tooth pain in the past.  ice? 


    also, your diet looks pretty inflammatory.  high in omega 6s.  and mycotoxin possibilities.  and check out this informative article, cause your protein powder, brown rice, chickpeas, peanut butter, etc. may not be the best sources of the nutrients you're wanting from them. 


     


    http://paleodietlifestyle.com/beans-and-legumes/


     


    good luck


     


    In addition to the legumes, would you be able to point out some of the other items that you believe may be highly inflammatory? And perhaps (if you have the time/desire) suggest some alternatives that are better for the body? Thanks very much :)


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