Help For My Daughter
Hi all. It has been a long while since I posted.
I am looking for help from you all at my daughters last lab results.
Long story short...she has been on and off gluten since 6 months old. Never on dairy other than butter. Recently we tried to get her tested for celiac (which means eating gluten, for 3 months) but she didn't eat it daily. Anyways...she has always (like since 3 months old) have some sort of GI issues. First they thought silent gerd. then it kinda went away after removing gluten and dairy. at 1.5 yrs we moved cities and no longer were followed by a GI doc. On and off for the past almost 6 years(she will be 6 next week) she has had tummy pain. Cramps. on and off. It was never too bad and I always just associated it to her needing to poop. Now...after the last 5 months of hell...she has had tummy pains 2-10 times a week. FINALLY into see a pediatrician(my GP wouldn't refer her to peds GI) and we got her blood results back. They speak to anemia of chronic disease or inflammation. I only know that because my brother is in med school. The "real" docs don't think that is the case. They think it is constipation and want me to give her laxatives for 6 months! And supplement with iron. I am feeling so frustrated. She is now getting headaches on a weekly basis, sometimes more. I have to say we are not 100% BP anymore. We could do so again, but working full time and having a full time family we opted for mostly BP and 100 GF/DF. We probably eat rice more than we should.
Please, any input is welcome. At the moment I am sneaking liver into her...but not much. She probably doesn't get enough fats to be honest. I just don't want to treat a symptom...I want to find the cause. I need to know what next to ask and test for. She has just had an ultrasound and it came back totally clear.
IRON and TIBC 2 norm(12-31) umol/l
TCIB 55 norm(40-77)
Transferrin saturation 0.04 norm (0.20 - 0.55)
Ferritin 39 norm(10 - 110)ug/l
retic relative 0.8 norm(0.2-2.0)
retic absolute 37 norm(40-100)10e9/l
only other thing off was
lymphocytes 0.9 (norm1.3 - 8.0)
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